Links
Carolinas Neuromuscular/ALS Center - Located in Charlotte, North Carolina. The ALS Center's official website, designed and maintained by Carolinas Healthcare System.
ALS Association- Jim " Catfish" Hunter Chapter - The Carolinas' chapter of the ALS Association.
The Muscular Dystrophy Association's (MDA) ALS division
Alexa R. Good Foundation - The purpose of the Alexa R. Good ALS Foundation is to provide financial assistance and support to residents in North and South Carolina who are living with ALS. This assistance may include, but is not limited to: the purchase and / or rental of specialized equipment, sitters, and direct assistance to the family.
ALS support groups in North Carolina
ALS support groups in South Carolina
Description of support groups in the Charlotte metro area:
ALS Association Caregiver Support Group (Charlotte)
Meetings provide peer support, allow you to learn firsthand from others who
are dealing with ALS and allow caregivers to share their experiences with
each other. Members can expect to receive information about ALS,
information from expert speakers and fellowship from others facing ALS. Led
by Louise Frumkin, MSW, this group meets from 1:00 to 3:00 pm on the third
Saturday of every month at Myers Park Presbyterian Church in Charlotte. For
details, please contact Louise Frumkin at 704/756-1958.
ALS Association Caregiver Support Group (Huntersville)
Meetings provide peer support, allow you to learn firsthand from others who
are dealing with ALS and allow caregivers to share their experiences with
each other. Members can expect to receive information about ALS,
information from expert speakers and fellowship from others facing ALS. Led
by Dr. Valerie Balog, PhD, this group meets from 10:30 am to 12:30 pm on the
first Saturday of every month at Huntersville Presbyterian Hospital. For
details, please contact Dr. Valerie Balog at 704/519-7860.
MDA Resource Support Group (Charlotte)
Meetings offer patients, families, and caregivers a neutral and open place to
learn about living with ALS. Patients living with any stage of disease are
welcome, as are caregivers without patients. Led by Sarah Baldwin, this
group meets from 11:30 am to 1:30 pm on the last Saturday of even months at
a location to be announced. For details, please contact Sarah Baldwin at
704/567-2912.
